So, yeah. I’m asking for money. Except that we won’t actually ever see or touch any of it. It all just goes directly to the Crohn’s and Colitis Foundation of America, a private organization supporting research and education dedicated to helping those suffering from Crohn’s and ulcerative colitis to lead healthier, fuller lives.
Our family will be participating in a benefit walk on June 7 and we are looking forward to meeting some people in person who are also living with this disease. And hoping to raise a little extra money for the foundation. It has already proven to be an excellent source of information and encouragement and we are not even actually members yet. Oh, and since I haven’t really written that much about it here, you can read all my wishy-washy personal journey type posts over at my personal blog. The top one looks a lot like this one, but the rest aren’t.
So anyway…if you got online today just wondering what tax deductible donations you could make to foundations you likely hadn’t heard of before at the request of someone you have never met, have I got the thing for you! Or you could just click over to see the picture of my daughter on a horse. You would not believe how excited she was to get to ride that horse. Before that, her yearly highlight was always the members’ appreciation night at the zoo when the pony rides are free.
If interested, all you have to do is click on the drop down menu at the top of the fund raising page and click on my name (it is the only one there right now since my children are all under 13). It will give you the instructions from there. And if you like donating other people’s money to foundations you have never heard of at the recommendation of strangers on the internet, they even have the paperwork for matching contributions from your employer. Thanks to my mom’s employer, we already reached our first goal. Maybe we set our sights too low.
Thank you everyone for your continued prayers and support. We really appreciate them!
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My sister-in-law has Crohn’s and suffers a lot more than she usually lets on. It’s a nasty disease.
I’m sorry to hear that, but it sounds like that is common. I just read a report that said that while 75% of Crohn’s and ulcerative colitis sufferers thought that pain was just a part of their lives, only 25% of doctors thought it was that way.
It sounds like most people just ignore the pain and rarely talk about it, even with the medical staff charged with their care.
Did you get a final diagnosis, Dana?
Thanks for asking. We should be getting some money from the government, i.e. you, soon. I’ll give some of it back, okay?
Yes, the final diagnosis is Ulcerative Colitis, a chronic but generally manageable disease causing inflammation of the colon. There are a lot of complications and heightened risk of cancer, not to mention the meds are nasty.
But she is responding well and I hope she won’t need the really yucky stuff very often.
Renae, you are so sweet. I almost cried this morning when I saw how much my parents donated…and the other donor is my mom’s boss. I already knew our greatest advantage was the support of our family, but that is truly humbling.
But seriously, just a dollar or two would make everyone here jump up and down. I wasn’t really expecting anything which is why we set our goal so low.